Susan O'Hara
Aquafit Expert, and Author
Person with lived experience
United States
Persons with lived experience
Person with lived experience
American Lipedema Association
About Susan O'Hara
Susan O’Hara is a lipedema patient, the founding president of the American Lipedema Association, and author of several books about lipedema. She shares her personal, lived experiences with lipedema, treatments, conservative care, fashion, and more on LegsLikeMine.com and its social media sites including Facebook, TikTok, BlueSky, Pinterest, YouTube, X, and Instagram. Susan has represented the international lipedema community for years now, attending the first Lipedema World Congress in Potsdam, Germany, speaking at the second Lipedema World Congress in Rome, at the Lipoedema Australia Conference in 2025, and in numerous news stories, podcasts, magazine articles, and a documentary about lipedema (yet to be released).